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Monday, March 7, 2011

Long Time, No Blog

Since my last insomnia-induced crazy blog entry, I have not only continued to suffer from insomnia, but have also had some sick family members to take care of and a million other things that have kept me from blogging.  I think my medicine is starting to really work for me now, so my joint pain and rashes are getting to be less bothersome, but this pesky "unable to sleep even if I take enough sedatives to put a rhino down" pattern is really starting to get to me.  It's hard to say if I REALLY feel better because I am constantly in a sleep-deprived state.

I have had several AH-HA moments since I last wrote.  Some good and some sad.  The good have come from some members of my online Lupus support people.  My Twitter Friend Sherri Blaise shared her empowering story about her road with Lupus and how she has overcome the obstacles to be a happy, healthy, business woman.  You should check out her new business site where she sells shirts that empower women with disabilities with logos that say "WARRIOR" or "DIVA" and have an assortment of "ribbon colors" for various causes, such as Lupus, Breast Cancer, Etc.  The site is http://www.prettydisabled.com/ 

I have also heard of several people in their late 20s and early 30s dying from lupus related illnesses.  That was a shocker, because even though I knew it could be deadly, I never actually knew anyone who had died from it--especially not young people.  It was sobering to hear of their passings and reminded me that lupus is nothing to play with.  It's hard to learn to walk the balance between taking lupus seriously and taking it too seriously, as a recently diagnosed person.  My heart and prayers go out to the families of those ladies.

My husband is home tonight after being away at work, so I'm keeping this one short and sweet.  Give some love to my girl Sherri, and check out her site, and remember to be patient and loving with your chronically ill friends (like me) because you never know what tomorrow holds for them.

1 comment:

  1. So proud of you Annie! Must say I definitely missed our late night twitter ramblings, but even I'm learning the do's & don'ts of life with lupus and staying up all night is definitely a don't!

    Learning how to manage lupus can be tricky business but remembering you have the full support of family & spoonies makes it a bit easier. I'm rooting for you lovie, kick some lupus arse!

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